Ally’s Story

Alastair (Ally) was born in Oxford and is of 100% Korean descent.  He turned two years old in September 2016. Ally was diagnosed with Chronic Granulomatous Disorder (CGD), an extremely rare and life threatening condition where his immune system does not work properly; even a small infection can be fatal.  Since February 2016, he has been living at the hospital with Mum, and is currently at the specialist centre, Great Ormond St Children Hospital in London.

Ally needs a bone marrow transplant procedure, which could cure him completely, however no matching donor was found after searching all the world databases.  We need your help to find a donor match.  Please join the registry today!

When Ally is feeling good, and is not being poked and prodded by doctors and nurses, he loves kicking the football around, blowing bubbles, giving kisses and hi-fives, dancing and jumping (he doesn’t actually get off the ground), and drawing.  He likes watching Peppa Pig, Robocar Poli, and Paw Patrol.  And happy to wear anything with stripes =)

Follow Ally’s Journey


About Ally’s Family

Screen Shot 2016-09-05 at 10.18.26

Mum and Dad are originally from America (Chicago/Minneapolis) and lived in the San Francisco Bay Area before moving to the England.  Mum works as a scientist and lecturer at University of Oxford, and Dad works as an engineer in medical devices. Ally has an older brother Micah, whom he adores, and a lovely dog named Chocopie.